Unfortunately, I was not able to attend church today. Got up this morning with a pain of "9" on 10 scale. Heidi stayed home also with me. I am starting a regiment of Oxycodone today. I gave the Vicodin a week to see if it would help and it did not work well enough. My pain levels are usually 7-8 and the Vicodin might take it to a 4. So, even though I am against taking pain medicines I feel that it might help me with my eating if I control the pain better. The Vicodin and Oxycodone both cause major constipation. I am using Miralax for that, it works pretty well.
Eating is a big challenge right now. Most days I have a moderate size breakfast but usually unable to eat lunch or dinner. I am also vomiting usually 1-2 times per day. I am going to concentrate on eating more even if it takes me an hour to get some food down. I do not want to do supplements (Ensure) unless I absolutely have to! I have lost 8 lbs in the past 10-14 days. I am at the lowest weight ever in my adult life of 169 lbs.
Other than the pain and difficulty eating, I feel pretty good. Good energy level staying active.
I have made written request of the Cleveland Clinic for my PET scan results with their release form but have not had any success yet. My Oncologist also faxed in a release form so he could get the results and they have not received them yet either. I have to admit, I am disappointed in the Cleveland Clinic overall.
I will see my Radiation Oncologist on Tuesday at 3:00 pm at the Cleveland Clinic. At least then we will get the results of my scan. I will also see my Oncologist on Wednesday morning at 10:45 to determine our course of action (if needed).
Thanks Everyone for your words and prayers of encouragement! It really helps!